Links and Resources
The Links and Resources are intended for patients who have developed a serious or advanced illness and their family and friends.
http://www.engagewithgrace.org/ - the One Slide project from Engage With Grace: 5 questions to encourage family members to begin a conversation about end-of-life preferences
http://www.caringbridge.org/ - free personalized websites that connect family and friends during a serious health event
Financial Affairs at the End of Life 2nd ed., 2009 - a resource guide specifically designed for those in hospice care and their families by the Michigan Association of Certified Public Accountants and Hospice of Michigan
Questions & Answers About Hospice For You or a Loved One - a brochure specifically developed for the African American community by the Partners in Care Foundation
Legal Guide for the Seriously Ill : Seven Key Steps to Get Your Affairs in Order - prepared in 2009 by the American Bar Association Commission on Law and Aging for the National Hospice and Palliative Care Organization
Five Wishes - a simplified Living Will form from Aging With Dignity
POLST – Physician Orders for Life-Sustaining Treatment is a form that specifies the types of medical treatment that a seriously ill patient wishes to receive. This form is for California. For POLST information for other areas go to: http://www.ohsu.edu/polst/programs/state+programs.htm
Advance Directives by State
A living will allows you to document your wishes concerning medical treatments at the end of life.
A medical power of attorney (or healthcare proxy) allows you to appoint a person you trust as your healthcare agent (or surrogate decision maker), who is authorized to make medical decisions on your behalf.
Consumer’s Guide to Legal Help from the American Bar Association
Funeral Planning Assistance from the Funeral Consumer’s Alliance
My Funeral Choices Worksheet from the National Hospice and Palliative Care Organization
Find an Adult Day Services Association - search by location; from The National Adult Day Services Association
Eldercare Locator - from the US Administration on Aging; find local agencies for transportation, meals, home care and caregiver support services
Everyone Rides : Transportation Access for Culturally and Ethnically Diverse Elders - National Center on Senior Transportation’s recommendations for providing mobility for all
Family Caregiving 101 - resources for family caregivers of ill or disabled loved ones
Caring to Help Others : a Training Manual for Preparing Volunteers to Assist Caregivers of Older Adults - from Eisai, Inc., a human health care company